I have been bitten, pinched, smacked, head butted, licked,
sniffed, had my breasts groped, hair pulled and my bottom squeezed. No I was
not trying to exit a crowded dance club I may have been grocery shopping or
putting away dishes when most of these deeds were done. Sophie has a sensory
processing disorder. This means her brain has trouble receiving and responding
to information that comes through her senses. Sometimes she is overly sensitive
to things in her environment.
When she was three we took a road trip to Yellowstone. At
the first hotel she grabbed the tiny bar of soap provided and smelled for the
rest of the twelve day trip. At one point the slippery soap flew from her hand
in the car, she began to scream and cry. Bill had to pull over and I had to
crawl around the mini-van searching for the soap. She hated Yellowstone with
its strong smelling sulfur caldrons.
Sobbing and yelling out, no more
yucky poo-poo most of the time we were there.
Loud noises also affect her. Fire alarms, sirens, and the
thundering volume in theaters are a challenge for her. As I said in a previous
post our most successful dining out venture on vacation was when we used ear
plugs to her manage the volume. We called her ‘the sleeper’ the one and only
season she tried soccer. The stimulus of
the other kids hollering coupled with them running towards her caused Sophie to
simply lie on the field covering her head.
We noticed very early on that she took little notice of
things like very hot/cold water. Injuries that appeared to be painful she did
not pay attention to. On the other hand a tag in a tee-shirt would send her
into a fit of rage and tears that could last an hour. I became brand loyal to Hanes No Tags Shirts. Hair brushing is still an
ordeal no matter how much No More Tangles I use.
Her difficulty interrupting sensations from her muscles or
joints, causes her to bite and smell her toys,
tackle others (mostly me)stand too close when talking to people, hit too hard,
bite and ram her head into me. She often stomps and jumps in the house
resulting in pictures, vases and knick knacks toppling over.
I try and remember these things when I find myself a victim
of her sensory seeking behaviors but I am only human. It hurts. She is almost
as tall as me and over one hundred pounds if I am not expecting it she can
knock me down. Some days I want to push back, slap her or bite her too. Those
are the times when I have learned to just walk away. This is what happened
yesterday upon our return from the beach. We had just a few moments to get her
changed and ready for her Teen social group- this was my first mistake not
leaving enough transition time. I was attempting to rinse the sand from her
feet so I was bent forward when suddenly……..BAM! Her head bangs into me
catching me in that tender spot right above my eyebrow. Tears immediately
spring to my eyes. Taking a breath I stand and walk out of the bathroom.
It is hard not to react. It is embarrassing to stand in line
at the store while your fourteen year old daughter tries to put her hand down
your shirt or is licking your arm, ignore the harsh stares when others overhear me saying You may not bite. I have to remind myself it is not her fault,
she is not trying to hurt or draw attention to us. Some days are just tougher
than others.
Speechless... but admire your truth and honesty. I love you from just your pure examples. <3
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